1st Race for Rare Diseases

a { text-decoration: none; color: #464feb; } tr th, tr td { border: 1px solid #e6e6e6; } tr th { background-color: #f5f5f5; } From the group of Associations and Patients with rare diseases in the Balearic Islands, we are launching the 1st edition of the RACE FOR RARE DISEASES under the slogan "Adding miles to research", in collaboration with IDISBA. This is a charity race aimed at bringing together sport, fun, and solidarity.

What are rare diseases?

In Europe, rare diseases are those that affect fewer than 5 people per 10,000 inhabitants.

There are between 6,000 and 7,000 rare diseases, so despite their low frequency, they affect between 6% and 8% of the population. It is estimated that there are more than 3 million affected people in Spain, approximately 6,000 of them in the Balearic Islands.

Most of these diseases are chronically debilitating or potentially life-threatening and, due to their low prevalence, require special efforts to combat them.

For all these reasons, they represent a major health problem that must be addressed.

OBJECTIVES

1. To raise awareness of rare diseases and increase public understanding.

2. To promote research, as all proceeds will be allocated to research projects led by the participating associations.

3. To advocate for better social and healthcare services and to defend the rights of affected individuals, as well as to improve their quality of life.

HOW TO PARTICIPATE?

By registering through the website http://www.elitechip.net and choosing either the in-person option or the "bib number 0" (for those who cannot participate but wish to make a donation).

The race will take place on February 14, 2026. Bib numbers can be collected from 9:00 a.m. There will be a children's race (starting at 9:30 a.m.), a running category (5.7 km, starting at 10:00 a.m.), and a popular category (2.5 km, starting at 10:10 a.m.). Children may register free of charge on the same day of the race.

ROUTE

• A popular route in which participants can take part by walking, in a wheelchair, or using any other modality. Distance: approximately 2.5 km. One lap of the circuit.
• Route: starting at EHIB, Valldemossa Road, Menorca Street, Caminal Eivissa, Caminal Foradada, Conillera Street, Caminal Mallorca, Caminal Formentera, Menorca Street, and Valldemossa Road.
• Running route where participants must complete the circuit in running mode. One lap of the circuit plus two full laps of the UIB cross-country circuit. Approximate distance: 5.7 km.

REGISTRATION

Registration can be completed via the Elitechip website:

• In-person race: €10 (with the possibility of making an additional donation).

• Bib number 0 (for people who wish to contribute but will not participate in the race).

REGISTRATION DEADLINE

Registration will be open until February 13 at 11:00 p.m., or in person on the same day of the race.

PRIZES

A gift will be given to the first 100 registered participants, and there will be a prize raffle at the end of the event, based on bib numbers and the purchase of raffle tickets.

SERVICES

Cloakroom and refreshments will be available at the end of the race.

ORGANIZED BY

• Balearic Association for Amyotrophic Lateral Sclerosis ELA BALEARS
• Balearic Association for Andrade Disease
• National Association for Ehlers-Danlos Syndromes and Hypermobility

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